Access
Data Access
Data Request Process
Steps
- Contact Us The requestor contacts IDx via the form to request a data consult with an IDx resource specific to their desired domain.
- IDx Data Consultation The IDx resource determines if the requestor has the appropriate IRB requirements, application information, and project specifications. They check if the data is readily available in the IDx database.
- IDx Data Request Application If it is determined via the consult that the study is viable, the requestor fills out the full data request application on the REDCap platform.
- IDx Data Request Approval Process The requestor may be asked to present on their proposed research to the appropriate Scientific Advisory Group. Two reviewers are selected from the group to review the application.
- IDx Data Request Distribution If approved, the entire IDx team works together the process the data request. PHI requests require an extended fulfillment period in order to process the necessary documentation.
Data Request Consultation and Application
Following the data request consult, a link and return code are sent via email to submit the data request application.
Data Use Agreement
The IDx Data Transfer Agreement is for 3 years and is a one-time occurrence unless otherwise requested. When the agreement expires, the data must be destroyed.
Data Dictionary
The data dictionary identifies the properties, data types, and values for the existing data elements stored in the database. It also provides metadata that assists in defining the scope and usage of the data elements.